Fort Dodge native Lily Lee, a 12‑year‑old seventh‑grader diagnosed with spinal muscular atrophy, and Maxwell teen Landon Cornelius, a freshman at Collins‑Maxwell High School living with Skraban‑Deardorff Syndrome, have been selected as honorary kid captains for this weekend’s college football matchups.
Lily Lee’s inspiring journey
Lee received her diagnosis at just 20 months old. Shortly after, the FDA approved Spinraza, the first treatment for spinal muscular atrophy, and she became the inaugural patient at Stead Family Children’s Hospital to try a new therapy aimed at slowing disease progression. She continues to participate in a clinical research study that provides monthly infusions intended to build muscle, a regimen she will need for the rest of her life.
Despite the challenges, Lily excels academically, enjoys riding her hand‑cycle, and spends time with friends at school. She loves swimming at summer camp and dreams of becoming a cosmetologist one day. Her perseverance and bright spirit have made her a beloved figure in her community.
Landon Cornelius’s bright outlook
Landon, a freshman at Collins‑Maxwell High School, was diagnosed with the rare Skraban‑Deardorff Syndrome, a condition that can cause seizures and developmental delays. His family describes him as “always smiling,” and they say his optimism lights up any room.
As the Iowa State Cyclones prepare to host 15th‑ranked Utah at Jack Trice Stadium in Ames, Landon will join the crowd of fans cheering on the team. His presence underscores the university’s commitment to inclusivity and community support.
Game day details
The Iowa Hawkeyes, currently ranked 17th, travel to Ann Arbor to face 18th‑ranked Michigan. Kickoff for both contests is scheduled for 2:30 p.m. on Saturday. Fans can expect an exciting day of college football, with the added heart‑warming sight of Lily and Landon representing the spirit of perseverance and hope.
Both schools highlighted the selections as an opportunity to raise awareness about rare medical conditions and to celebrate the resilience of young people facing extraordinary challenges. The kid captains will receive a special jersey and will be introduced on the field before kickoff, offering a powerful reminder that determination and faith can overcome adversity.
Original reporting: KCCI Des Moines — read the source article.
