World Multiple Sclerosis Day, observed on May 30, serves as a vital platform to raise awareness and advocate for enhanced support and research for those affected by this challenging condition. Selena Bongiorno, an MS patient and advocate, emphasizes the importance of community and resources available to individuals battling this disease. ‘World MS Day is a place to raise awareness for everyone with MS and let them know they’re not fighting alone,’ she shared.
Selena’s Journey and Advocacy
Diagnosed in 2020, Selena experienced an initial period of grief but soon transformed her journey into one of advocacy. She became involved in the MS community by leading a Walk MS team, a Bike MS team, and starting the ‘Miss Wired Podcast’ to share stories and provide reputable information. Her efforts extend to state and federal advocacy through the MS Society, focusing on drug reform and ensuring treatment accessibility for all.
Multiple Sclerosis is a neurodegenerative illness that disrupts communication between the brain and spinal cord, leading to symptoms like numbness, tingling, and fatigue. While there is no cure yet, research has made significant strides since 1993, when no drugs were available. Selena works at Premier Research Institute at Palm Beach Neurology, advocating for research as a viable option for those without financial resources.
Message of Hope and Awareness
Selena’s message to others is clear: ‘Your diagnosis does not define you. You are more than this disease.’ She stresses that MS can often be an invisible illness, making advocacy and compassion crucial. Her dedication to raising awareness and supporting the MS community is a testament to the power of faith and community in overcoming challenges.
Original reporting: WPBF (Treasure Coast / Hearst) — read the source article.