For the past fifty years, Robert and Edna Nicholson have been inseparable. Now, as they face Robert’s Alzheimer’s diagnosis, they are turning to Cleveland’s Benjamin Rose Institute for help in planning their future care.

Addressing Alzheimer’s in the African-American Community

The institute’s SHARE program is designed to help individuals with early-stage memory loss and their caregivers plan for the future. Historically, the program has mostly reached white families, but researchers are working to expand its reach to the African-American community, which is disproportionately affected by Alzheimer’s disease.

Edna and Robert are among the few dozen African-American couples who have participated in the new targeted SHARE program. They learned about the program through a flyer that was specifically advertising to the African-American community, which made them feel more open to participating.

The SHARE program provides counseling sessions that explain the science behind dementia, offer suggestions for safe activities, and help participants craft an overall care plan. Edna and Robert found the program to be incredibly helpful, and they appreciate the opportunity to have a say in Robert’s future care.

A Personalized Approach to Care

Through the SHARE program, Edna and Robert were able to connect with a local senior program for people with Alzheimer’s and make a future care plan. Family members gathered on a video call and took responsibility for different tasks, ensuring that Robert will receive the care and support he needs.

For Edna and Robert, the SHARE program has been a valuable resource in navigating the challenges of Alzheimer’s disease. They hope that their story will help raise awareness about the importance of addressing Alzheimer’s in the African-American community and encourage others to seek out resources like the SHARE program.

Original reporting: Signal Cleveland — read the source article.