Saurabh Singh’s memoir, Shaurya: A Father’s Promise, is a deeply moving story of love, loss, and resilience. When his young son was diagnosed with Hunter Syndrome, a rare and life-threatening genetic disorder, Saurabh’s life took a dramatic turn.

A Father’s Journey

Instead of accepting helplessness, Saurabh made a decision that would reshape his life. He began writing to government officials, pharmaceutical companies, and reading medical literature to ensure his son’s right to treatment. Over time, his work went beyond his family and became part of a larger campaign for awareness and policy change for rare diseases in India.

As an advocate at the Jharkhand High Court and Co-Founder and Director of Rare Diseases India Foundation (RDIF), Saurabh is still working with families, doctors, and policymakers to make patients with rare diseases visible. His memoir provides readers with a rare insight into the personal aspects of public advocacy, recounting his experiences of speaking up in court, writing to policymakers, and talking to doctors and caregivers.

A Story for All Readers

While based on the experience of one family, the book transcends the world of medicine or law. It’s a tale for parents, caregivers, healthcare providers, policymakers, and anyone who’s ever felt uncertain, with no clear path forward. At its heart, Shaurya: A Father’s Promise asks a simple but powerful question: what would any parent do if a child’s future depended on refusing to surrender?

Original reporting: KTBS 3 (Shreveport) — read the source article.