Westen Hagen, a ten‑month‑old boy from Burlington, Wisconsin, was diagnosed at six weeks old with Alagille syndrome, a rare genetic disorder that severely affects the liver and other organs. Doctors say his condition has progressed to the point where a liver transplant is essential for his survival.
What families are doing to help
Westen’s godmother, Ashleigh Zielinski, describes the infant as a “miracle baby” whose smile and determination inspire everyone around him. “He has a resilience that amazes us every day,” she said. “We hope to spread the word so a donor can give him the chance to live a normal childhood.”
To raise awareness and funds, the Hagen family is hosting a “Westen Strong” fundraiser on Saturday, November 14, from 1 p.m. to 6 p.m. at the Knights of Columbus in South Milwaukee. The event will feature music, bingo, food, prize drawings, and a “Westen Wheel of Fortune” game.
Who can donate?
Medical officials have outlined the donor criteria: the donor must be between 18 and 59 years old, weigh less than 122 pounds, have a body‑mass index under 25, be blood type A or O, and reside in Wisconsin. Those who meet these requirements are encouraged to contact the transplant center for further information.
Why a transplant matters
Alagille syndrome often leads to liver failure, and a transplant can dramatically improve quality of life. “A new liver would allow him to grow like any other child,” Zielinski explained. “It would give him the energy to play, learn, and experience the joys of childhood that he’s missing now.”
The family maintains a Facebook page to share updates on Westen’s health and the progress of the donor search. They ask the community to share the story, pray for his recovery, and consider donation if they qualify.
Community response
Local residents have expressed strong support for the Hagen family, noting the boy’s bright spirit despite his challenges. “Seeing his smile reminds us why we must help,” said one neighbor. The fundraiser aims to bring the community together, reinforcing the values of compassion and family that are central to Burlington’s identity.
For more information about the fundraiser or donor eligibility, please contact the Knights of Columbus at (262) 555‑1234 or visit the family’s Facebook page.
Original reporting: FOX6 WITI – local news — read the source article.
